Privacy requirements and legislation will depend on the appraisers conducting the assessment. In general, data collected with the CAPL are subject to all privacy and data storage regulations applicable to the organization conducting the assessment. The identity of the child should remain confidential at all times. It is recommended that CAPL appraisers use group averages if discussing CAPL results with a group of children. Organizational policies should be followed regarding the dissemination of the assessment results.
Participation in the CAPL assessments is always voluntary. If children do not wish to participate in 1 or more of the tests, they should not be required to do so. Children’s willingness to participate in any testing is completely voluntary even if parents/guardians have given permission for their participation.
Participation in research requires informed consent from the parent/guardian and the assent of the child. An example of a parent consent form can be found in Appendix A. An example of a child assent form can be found in Appendix B. These documents can be used as templates to develop the consent/assent forms required by the research ethics board of your own organization.