Privacy requirements and legislation will depend on the appraisers conducting the assessment. In general, data collected with the CAPL are subject to all privacy and data storage regulations applicable to the organization conducting the assessment. The identity of the child should remain confidential at all times. It is recommended that CAPL appraisers use group averages if discussing CAPL results with a group of children. Organizational policies should be followed regarding the dissemination of the assessment results.

Participation in the CAPL assessments is always voluntary. If children do not wish to participate in 1 or more of the tests, they should not be required to do so. Children’s willingness to participate in any testing is completely voluntary even if parents/guardians have given permission for their participation.

Participation in research requires informed consent from the parent/guardian and the assent of the child. An example of a parent consent form can be found in Appendix A. An example of a child assent form can be found in Appendix B. These documents can be used as templates to develop the consent/assent forms required by the research ethics board of your own organization.

If you choose to enter the assessment results into the CAPL on-line reporting system, you will be notified that the data you are entering can be used for research purposes. All identifiable information will be removed and the de-identified data will be transferred to the CAPL research database maintained by the HALO at the Children’s Hospital of Eastern Ontario (CHEO) Research Institute. The HALO research database is utilized by scientists to increase knowledge about the physical literacy of children in Canada and around the world. The CAPL database and the studies accessing the de-identified information are reviewed and approved by the CHEO Research Ethics Board (REB). The CHEO REB is a committee that includes individuals from different professional backgrounds. The Board reviews all research connected to the hospital (CHEO) or CHEO Research Institute that involves people. The goal of the CHEO REB is to ensure the protection of the rights and welfare of people participating in research. The CHEO REB’s work is not intended to replace a parent or child’s judgment about what decisions and choices are best for them. Representatives of the CHEO REB could review the CAPL database in fulfilling the Board’s roles and responsibilities for research oversight. Additional information about the research use of CAPL data may be obtained from Dr. Mark Tremblay, Director, HALO Research Group (613-737-7600 ext. 4114; mtremblay@cheo.on. ca) or the Chair of the CHEO REB (613-737-7600 ext. 3272).